SCAGO Sickle Cell Disease Summit Program

26 sessions available

Friday August 21st

8:30 AM - 9:30 AM

Summit Day 1

Breakfast

Welcome

Arrival/Registration and Breakfast

⏱️ 14 days

9:30 AM - 9:50 AM

Opening

Plenary

Opening

Official Opening and Welcome / MP and MPP Welcome

Moderator

Lanre Tunji-Ajayi

Speakers

Tom Rakocevic

Delaney Hines

⏱️ 14 days

9:55 AM - 10:20 AM

Keynote

Keynote (with Q&A)

Modernizing SCD Care – Re-imagining the Treatment Model from Crises Intervention to Health Maintenance

Moderator

Delaney Hines

Speakers

Dr. Patrick Hines

⏱️ 14 days

10:25 AM - 11:25 AM

Plenary

Hydroxyurea, Transfusion, and Beyond: Treatment Decisions in Sickle Cell Disease

Moderator

Dr. Donnell Ivy

Speakers

Dr. Robert Klaassen — Optimizing Disease-Modifying Therapy in Sickle Cell Disease: When to Use Hydroxyurea, Chronic Transfusion, and Emerging Treatment Strategies

Panelists

Chiesi — Managing Iron Overload in Sickle Cell Disease: Monitoring, Chelation Therapy, and Improving Long-Term Outcomes

Daniel Adesina — Shared Decision-Making in Sickle Cell Disease: The Patient Experience in Communication, Adherence, and Partnering with the Healthcare Team

⏱️ 14 days

11:25 AM - 11:40 AM

Break

Morning Break

Break

⏱️ 14 days

11:40 AM - 12:10 PM

Plenary

Advancing Industry Alliance

Speakers

Novo Nordisk – Canadian Findings from the LISTEN (Learnings and Insights into Sickle Cell Trial Experiences) Survey.

⏱️ 14 days

12:10 PM - 1:10 PM

Networking

Lunch / Poster Presentations / Networking

⏱️ 14 days

Concurrent Sessions — 1:15 PM to 2:15 PM

1:15 PM - 2:15 PM

Concurrent A

Patient Track

Patients – (Concurrent Session) Concurrent A (with Q&A)

Renal and Pulmonary Hypertension – Complications in Sickle Cell Disease

Moderator

Dr. Dana Powell

Panelists

Dr. Andrea Cervi — Beyond Pain: Understanding Multisystem Involvement in Sickle Cell Disease

Dr. Melanie Kirby-Allen — Pulmonary Hypertension Pathophysiology in Sickle Cell Disease

Dr. Donnell Ivy — Living with Renal Complications in Sickle Cell Disease

⏱️ 14 days

1:15 PM - 2:15 PM

Concurrent A

Provider Track

Providers – (Concurrent Session) Concurrent A (with Q&A)

Innovations in Sickle Cell Disease: Translating Gene and Cell Therapies into Global Practice

Moderator

Dr. Jennifer Bryan

Speakers

Dr. Angelina Marinkovic — Essential Tools for an Effective Gene and Cell Therapy Program (What Is Necessary)

Panelists

Dr. Auro Viswabandya — Patient Eligibility, Selection, and Long-Term Follow-Up in Gene and Cell Therapies

⏱️ 14 days

Concurrent Sessions — 2:20 PM to 3:20 PM

2:20 PM - 3:20 PM

Concurrent B

Patient Track

Patients – (Concurrent Session) Concurrent B (with Q&A)

The Role of Lived Experience in Shaping Inclusive Healthcare Policies

Moderator

Tanya Elese

Speakers

Fitz-Ann Howell — Integrating Patient-Reported Outcomes into Care Planning: The Hospital Experience Reporting Portal (HERP)

Panelists

Jayne Jackden — Gaps in Care Pathways

Rugi Jalloh — Bringing the CBS Lens and Patient Advocacy: Advocating for Inclusive Blood Donation Practices

⏱️ 14 days

2:20 PM - 3:20 PM

Concurrent B

Provider Track

Providers – (Concurrent Session) Concurrent B (with Q&A)

Apheresis – Optimal Exchange Transfusion Practices in Sickle Cell Disease

Moderator

Chloe Jang

Speakers

Dr. Sheharyar Raza — Treat Patients, Not Numbers: Threshold-Based Transfusion in Sickle Cell Disease

Panelists

Dr. Johnny Mack — Operational Excellence: What “Optimal Exchange” Looks Like in Practice

⏱️ 14 days

3:20 PM - 3:35 PM

Break

⏱️ 14 days

3:35 PM - 4:35 PM

Research

Plenary

Research Section

Research Abstract – Oral Presentations

Moderator

Dr. Dana Powell

Presenters

Beatrice Floris

Valerie Jansen

Tanya Louca

Dr. Sandra Newton

Karen Fleming

⏱️ 14 days

Saturday August 22nd

8:30 AM - 9:30 AM

Breakfast

⏱️ 15 days

9:35 AM - 9:40 AM

Opening

Plenary

Opening and Welcome

Moderator

Delaney Hines

⏱️ 15 days

9:45 AM - 10:05 AM

Keynote

Keynote (with Q&A)

From Innovation to Impact: Centering Lived Experience to Transform the Sickle Cell Care Journey

Speakers

Dr. Titi Fasipe

⏱️ 15 days

10:10 AM - 11:10 AM

Plenary

Plenary (with Q&A)

Understanding Inheritance: Sickle Cell Trait and Its Impact on Future Generations

Moderator

Chloe Jang

Speakers

Dr. Olanyii Ajisafe — Closing the Awareness Gap: Informed Reproductive Decision-Making in Sickle Cell Trait

Panelists

Tanya Elese — Barriers to Sickle Cell Trait Testing in Canada

⏱️ 15 days

11:10 AM - 11:25 AM

Break

⏱️ 15 days

Concurrent Sessions — 11:25 AM to 12:25 PM

11:25 AM - 12:25 PM

Concurrent A

Patient Track

Patient – (Concurrent Session) Concurrent A (with Q&A)

Mental Health, Psychosocial Needs, and Dedicated Resources and Supports

Moderator

Samira Javadi

Panelists

Dr. Sandra Newton — Psychological Burden of Living with SCD: Beyond Pain

Heather Manu — Navigating the Healthcare System: Trust, Trauma, and Patient Experiences

⏱️ 15 days

11:25 AM - 12:25 PM

Concurrent A

Provider Track

Provider – (Concurrent Session) Concurrent A (with Q&A)

Canadian Guidelines and Protocols in Sickle Cell Disease to Support Equitable Access to Care

Moderator

Dr. Dana Powell

Panelists

Mrs. Lanre Tunji-Ajayi — A Framework for Developing Comprehensive Sickle Cell Care Centers: Defining Staffing Roles, Ratios, and Responsibilities

Dr. Jennifer Bryan — Sickle Cell Disease in Ontario: A Provincial Model of Care

⏱️ 15 days

12:25 PM - 1:25 PM

Networking

Lunch / Poster Presentations / Networking

⏱️ 15 days

Concurrent Sessions — 1:25 PM to 2:25 PM

1:25 PM - 2:25 PM

Concurrent B

Patient Track

Patient – (Concurrent Session) Concurrent B (with Q&A)

Navigating Sickle Cell Disease Across the Lifespan: A Conversation with Patients, Caregivers, and Clinicians

Moderator

Mary Oduwole

Panelists

Dr. Mohammad Jarrar

Dainah Ramsay

Chantal Kamgne

Daniel Adesina

Patricia Defo

Cameisha Hemmings

⏱️ 15 days

1:25 PM - 2:25 PM

Concurrent B

Provider Track

Provider – (Concurrent Session) Concurrent B (with Q&A)

Inpatient Sickle Cell Disease Management – What Clinicians Need to Know?

Moderator

Dr. Jennifer Bryan

Speakers

Dr. Titi Fasipe — Delivering High-Quality Inpatient SCD Care: Coordination, Patient Experience, and System-Level Improvement

Dr. Sarah Patterson — Acute Inpatient Management of SCD Crises: Rapid Assessment, Pain Control, and Complication Recognition

Dr. Patrick Hines — Delivering High-Quality Inpatient SCD Care: Coordination, Patient Experience, and System-Level Improvement

⏱️ 15 days

2:25 PM - 2:40 PM

Break

⏱️ 15 days

2:40 PM - 3:40 PM

Plenary

Plenary – Panel Talk (with Q&A)

Precision Medicine in SCD: Integrating Genomics, Biomarkers, and Personalized Care Pathways

Moderator

Dr. Donnell Ivy

Speakers

Dr. Rajat Kumar — Turning Genetic and Biomarker Data into Individualised Care Pathway

Dr. Kevin Kuo — Emerging Gene-Editing and Gene-Addition Approaches in Sickle Cell Disease

⏱️ 15 days

3:45 PM - 4:00 PM

Plenary

Closing Remarks

Speakers

Lanre Tunji-Ajayi

⏱️ 15 days

August 15-16th, 2025

Sheraton Toronto Airport Hotel & Conference Centre

Check out Hotel

August 21st-22nd

Summit Program

August 21st-22nd

Summit Program

August 21st-22nd

Summit Program

Friday August 21st

Welcome

Opening

Keynote (with Q&A)

Plenary

Morning Break

Advancing Industry Alliance

Lunch / Poster Presentations / Networking

Patients – (Concurrent Session) Concurrent A (with Q&A)

Providers – (Concurrent Session) Concurrent A (with Q&A)

Patients – (Concurrent Session) Concurrent B (with Q&A)

Providers – (Concurrent Session) Concurrent B (with Q&A)

Break

Research Section

Saturday August 22nd

Breakfast

Opening and Welcome

Keynote (with Q&A)

Plenary (with Q&A)

Break

Patient – (Concurrent Session) Concurrent A (with Q&A)

Provider – (Concurrent Session) Concurrent A (with Q&A)

Lunch / Poster Presentations / Networking

Patient – (Concurrent Session) Concurrent B (with Q&A)

Provider – (Concurrent Session) Concurrent B (with Q&A)

Break

Plenary – Panel Talk (with Q&A)

Closing Remarks

August 15-16th, 2025

Sheraton Toronto Airport Hotel & Conference Centre

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