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A dedicated community focused organization

Enriching Patient Lives & Advancing Awareness of Sickle Cell Anemia

Join SCAGO to access resources, education, training, and advocacy for those affected by sickle cell disease.

Get Involved

25+ years

of advocacy

2000+

members

20+ years of advocacy and support for 2500+ members

A dedicated community focused organization

Enriching Patient Lives &
Advancing Awareness of
Sickle Cell Anemia

Join SCAGO to access resources, education, training, and advocacy for those affected by sickle cell disease.

Donate Now

20+ Years of Advocacy
for 2500+ Members

A dedicated community focused organization

Enriching Patient Lives &
Advancing Awareness of
Sickle Cell Anemia

Join SCAGO to access resources, education, training, and advocacy for those affected by sickle cell disease.

Donate Now

20+ Years of Advocacy
for 2500+ Members

REGISTRATION IS NOW OPEN!

The Sickle Cell Awareness Group of Ontario (SCAGO) invites you to participate in the SCAGO Sickle Cell Summit 2026, a two-day, in-person gathering focused on improving outcomes and lived experiences for individuals and families affected by sickle cell disease (SCD) across Canada.

Who Is It For?

The Summit brings together:

-Individuals living with sickle cell disease, sickle cell trait and their family members, caregivers and advocates

-Physicians, nurses, and allied health professionals.

-Community service agencies, nonprofit organizations and industry partners.

-Health system leaders, researchers, and policy stakeholders

-Partners committed to health equity and high-quality care

This Summit is open to everyone, and is designed to ensure that patients, families, clinicians, and system partners can learn together and co-design solutions that work in real life.

REGISTRATION IS NOW OPEN!

Who Is It For?

The Summit brings together:

-Individuals living with sickle cell disease, sickle cell trait and their family members, caregivers and advocates

-Physicians, nurses, and allied health professionals.

-Community service agencies, nonprofit organizations and industry partners.

-Health system leaders, researchers, and policy stakeholders

-Partners committed to health equity and high-quality care

This Summit is open to everyone, and is designed to ensure that patients, families, clinicians, and system partners can learn together and co-design solutions that work in real life.

REGISTRATION IS NOW OPEN!

Who Is It For?

The Summit brings together:

-Individuals living with sickle cell disease, sickle cell trait and their family members, caregivers and advocates

-Physicians, nurses, and allied health professionals.

-Community service agencies, nonprofit organizations and industry partners.

-Health system leaders, researchers, and policy stakeholders

-Partners committed to health equity and high-quality care

This Summit is open to everyone, and is designed to ensure that patients, families, clinicians, and system partners can learn together and co-design solutions that work in real life.

Stay Informed and Engaged

Upcoming Webinars, Events & News

Opportunity

June 25, 2026

Join the Youth Empowerment Program

Who can apply? Youth with or affected by sickle cell disease Advocates for individuals with sickle cell disease Ages 15-30, Canadian citizenship, permanent residency or refugee status. What's in it for you? A micro-grant of up to $5,000 to spend towards a pre-approved Youth-led project from April 2026-September 2026 Develop leadership and project management skills in a hybrid program with peers across Canada Be a part of groundbreaking initiative to make a difference in your community

Opportunity

Opportunity

Opportunity

Opportunity

Event

Learning for Life

July 24, 2026 • 11 AM – 12 PM

Virtual

UNDERSTANDING GENE THERAPY IN SICKLE CELL DISEASE: BENEFITS, RISKS, AND TREATMENT CONSIDERATIONS

Speakers: DR. RAJAT KUMAR Hematologist Princess Margaret Cancer Centre ANDREA KHANJIN Minister of Red Tape Reduction of Ontario, Patient VICTORIA GRAY World's First Sickle Cell Patient Treated With CRISPR Gene Editing

Official Charity Partner: 2026 TCS Charity Challenge

Event

October 16, 2026 • 9 AM

Toronto

Official Charity Partner: 2026 TCS Charity Challenge

Join Team SCAGO for the Waterfront Marathon 5K Start line: University Ave, south of Pearl St, Toronto HOW TO GET INVOLVED: . 9:00 AM Start Time REGISTER FOR THE 5K AND SELECT SCAGO · Start line: University Ave, JOIN OR CREATE A TEAM -REGISTER FOR THE 5K AND SELECT SCAGO -JOIN OR CREATE A TEAM -FUNDRAISE AND INVITE OTHERS TO SUPPORT -DONATE DIRECTLY IF YOU CAN'T RUN Can't join the 5K? You can still make an impact. Use the link below and select "Donate Now" under the Sickle Cell Awareness Group of Ontario to support SCAGO and the sickle cell community. Register or donate to SCAGO by clcikign the button. QUESTIONS? PLS. REACH OUT TO: gta@sicklecellanemia.ca

Opportunity

June 25, 2026

Join the Youth Empowerment Program

Opportunity

Opportunity

Opportunity

Opportunity

Event

Learning for Life

July 24, 2026 • 11 AM – 12 PM

Virtual

UNDERSTANDING GENE THERAPY IN SICKLE CELL DISEASE: BENEFITS, RISKS, AND TREATMENT CONSIDERATIONS

Event

October 16, 2026 • 9 AM

Toronto

Official Charity Partner: 2026 TCS Charity Challenge

Find the help you need

Explore our Resources

Discover our valuable resources designed to support the sickle cell community. From educational programs and immunization information to counselling services and grant support, we provide essential tools and opportunities to enhance your knowledge and well-being.

Learn More

Learn More

Ready to start your journey?

Ready to start your journey?

Find the help you need

Explore our Resources

Ready to start your journey?

Our Story

The Sickle Cell Awareness Group of Ontario (SCAGO) started on June 14th, 2005 as the Seed of Life Philanthropic Organization (SOLPO) in memory of a brave young man—Sunday Afolabi.

SCAGO is a leading charitable patient organization providing evidence-based support to families with children, adolescents, and adults, with sickle cell disease across the four regions of the province. It supports and engages in research, health promotion, patient and care providers’ education, community awareness, and the development of best practice guidelines.

The Sickle Cell Awareness Group of Ontario (SCAGO) started on June 14th, 2005 as the Seed of Life Philanthropic Organization (SOLPO) in memory of a brave young man—Sunday Afolabi. SCAGO is a leading charitable patient organization providing evidence-based support to families with children, adolescents, and adults, with sickle cell disease across the four regions of the province. It supports and engages in research, health promotion, patient and care providers’ education, community awareness, and the development of best practice guidelines.

Learn More

Our Story

The Sickle Cell Awareness Group of Ontario (SCAGO) started on June 14th, 2005 as the Seed of Life Philanthropic Organization (SOLPO) in memory of a brave young man—Sunday Afolabi. SCAGO is a leading charitable patient organization providing evidence-based support to families with children, adolescents, and adults, with sickle cell disease across the four regions of the province. It supports and engages in research, health promotion, patient and care providers’ education, community awareness, and the development of best practice guidelines.

Learn More

WELCOME TO SCAGO

Support and Resources For You and Your Family

Support and Resources For
You and Your Family

Care & Treatment

Advocacy & Awareness

Education & Support

Research & Studies

Committed To Your Wellbeing

Since its establishment, SCAGO has invested 100% of its resources in improving the quality of life of individuals and families affected by sickle cell disease. It engages in evidentiary advocacy on their behalf with the government, schools, and the healthcare system. We rely on the generous support of our volunteers, donors, and partners in our shared mission to improve the lives of Ontarians living with sickle cell disease—and ultimately to find a universal cure for this devastating disease.

Learn more