28D 03H 29M 09S
August-15th 16th
Summit Program
Shaping a Healthier Sickle Cell Disease Community Tomorrow, Through Actions Today
28D 03H 29M 09S
August-15th 16th
Summit Program
Shaping a Healthier Sickle Cell Disease Community Tomorrow, Through Actions Today
28D 03H 29M 09S
August-15th 16th
Summit Program
Shaping a Healthier Sickle Cell Disease Community Tomorrow, Through Actions Today
26 sessions available
Friday August 15
Breakfast
Welcome breakfast for all attendees.
Official Opening and Welcome
Keynote: Advancements and Advocacy in the Management of Sickle Cell Disease
- Evaluate recent clinical advancements in SCD therapies and their integration into medical practice.
- Interpret the impact of advocacy on clinical guidelines and patient access to care.
- Identify emerging challenges in disease management and propose clinician-driven policy improvements
Plenary: Ontario Health: An Update on the Implementation of the Quality Standards for Sickle Cell Disease
Update on the Ontario Health Quality Standards in Health Systems Change The State of Emergency and Impatient Care in Canadian Hospitals – Where things need to improve.
- Assess the system-level implementation of Ontario’s SCD Quality Standards.
- Design dashboards and data systems for ongoing monitoring.
- Lead change initiatives to close performance gaps at the institutional level.
Morning Break
Oral Abstract Presentation
Presentation of selected research abstracts.
Lunch / Poster Presentation
Networking lunch with poster presentations.
Sickle Cell: What every patient and parent needs to know about sickle cell disease
Concurrent session for patients and parents.
- Develop accessible educational materials that align with clinical needs.
- Collaborate with clinicians to improve understanding of available therapies.
- Support digital tools and platforms that enhance patient education.
- +2 more topics...
Best Practices in Prescribing Disease Modifying Therapies in SCD
Concurrent session for providers.
- Support policies that promote equity in blood donation recruitment and access.
- Collaborate with community organizations to improve donor diversity.
- Monitor equity metrics in transfusion practices.
Equity and Inclusion in Blood Donation
Concurrent session for patients.
- Opportunities and challenges to engage Community in Blood Donations
- Efforts in blood donation in Atlantic Provinces"
- What the Canadian Blood Services is Doing Differently to serve the Sickle Cell Community
Alloimmunization and Hyperhemolysis in SCD
Concurrent session for providers.
- Identify patients at high risk for alloimmunization and hyperhemolysis.
- Apply transfusion protocols that reduce immunologic complications.
- Manage acute hyperhemolysis episodes using current clinical guidelines.
Break
A short break for networking.
Comprehensive Models of Sickle Cell Disease Care
Plenary session on models of care.
- Design and fund integrated care models for SCD.
- Align care models with provincial or national standards.
- Measure the cost-effectiveness and patient outcomes of models.
Saturday August 16th
Breakfast
Morning breakfast for all attendees.
Welcome Remarks
Keynote: Creating a Connected World to Improve Sickle Cell Care
Creating a Connected World to Improve Sickle Cell Care - Registries, Community of Practice and other strategies to advance sickle cell care
- Describe the clinical utility of national and international SCD registries in improving care outcomes.
- Engage in communities of practice to share data and refine clinical decision-making.
- Identify how integrated systems improve care continuity and patient monitoring.
Health Care Providers and Community as Partners in Advancing SCD Care and Treatment
Plenary session on partnerships in care.
- Develop frameworks that support community-clinical partnerships in SCD care.
- Allocate resources to programs co-designed with patients and families.
- Measure the impact of community engagement on patient retention and outcomes.
Break
A short break for networking.
Future Innovation in Patient Pain Management for Sickle Cell Disease
Concurrent session for patients.
- Evaluate emerging pharmacologic and non-pharmacologic innovations in pain management for SCD.
- Investigate novel therapies and integrative approaches for managing pain in SCD.
- Collaborate with interdisciplinary teams to implement evidence-based, patient-centred pain protocols.
What's Hot in Cell and Gene Therapy: Which Should I recommend and when?
Concurrent session for providers.
- Educate providers on eligibility and patient selection for new therapies.
- Provide clinical support tools to assist in therapy recommendation decisions.
- Support post-marketing research on safety and efficacy.
Oral Abstract Presentation
Presentation of selected research abstracts.
Lunch / Poster Presentations
Networking lunch with poster presentations.
Transitioning Across the Life Span
Concurrent session for patients.
- Educate adolescents and families on self-advocacy and disease management.
- Coordinate care during periods of transition to reduce loss to follow-up.
- Monitor emotional well-being throughout the transition process.
Acute Chest Syndrome and Pulmonary Hypertension – How to spot it and the best way to treat it
Concurrent session for providers.
- Recognize early clinical and radiologic signs of acute chest syndrome and PH.
- Initiate appropriate acute and long-term management strategies.
- Evaluate patients for PH risk and refer for specialized care as needed.
Genetic Screening for Inherited Blood Disorders and Sickle Cell Trait in Canada
Plenary session on genetic screening.
- Design or support provincial screening programs aligned with national policy.
- Ensure equity in access to genetic counseling and follow-up services.
- Monitor program effectiveness and community engagement.
Closing Remarks
Closing remarks for the summit.
August 15-16th, 2025
Sheraton Toronto Airport Hotel & Conference Centre
Quick Links
Contact
Address: 330-5109 Steeles Ave W.
North York, ON , M9L 2Y8
Phone: GTA: 416-745-4267
Email: info@sicklecellanemia.ca
© SCAGO - All Rights Reserved -Disclaimer - Charitable Registration #: 83332 0872 RR 0001
Quick Links
Contact
Address: 330-5109 Steeles Ave W.
North York, ON M9L 2Y8
Phone: 416-745-4267
Email: info@sicklecellanemia.ca
© SCAGO - All Rights Reserved -Disclaimer - Charitable Registration #: 83332 0872 RR 0001
Quick Links
Contact
Address: 330-5109 Steeles Ave W.
North York, ON M9L 2Y8
Phone: 416-745-4267
Email: info@sicklecellanemia.ca
© SCAGO - All Rights Reserved -Disclaimer - Charitable Registration #: 83332 0872 RR 0001