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Patients & Caregivers

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SCAGO

Vaccine Equity Studies in Sickle Cell Disease

Read the results of the vaccine equity study in Sickle Cell Disease conducted by SCAGO, funded by the Public Health Agency of Canada

SCAGO

Health Canada Grants Marketing Authorization of First CRISPR/Cas9 Gene-Edited Therapy, CASGEVY®

The Sickle Cell Awareness Group of Ontario (SCAGO) is pleased with the news of CASGEVY (Exagamglogene Autotemcel) receiving marketing authorization for the treatment of Sickle Cell and Thalassemia disorders in Canada.

Pfizer Voluntarily Withdraws All Lots of Sickle Cell Disease Treatment OXBRYTA® (voxelotor) From Worldwide Markets

Pfizer Inc. announced today that it is voluntarily withdrawing all lots of OXBRYTA ® (voxelotor) for the treatment of sickle cell disease (SCD) at this time, in all markets where it is approved.

Youth in Pain

Short-Acting Opioid Analgesics for Pain Management

SCAGO

So My Child Has Sickle Cell Disease

A guide to understanding sickle cell disease and what it means for your child.

Jacob Pendergrast, MD, FRCPC

Blood Transfusion in Sickle Cell Disease

Improving the knowledge of peers and families about blood transfusion in sickle cell disease

Dr. Robert Klaassen

Pain Management

The Role of Parents & Family Members in sickle cell disease pain management

Dr. Julie Beaulac, Ph.D., C. Psych.

Adherence to treatment

Improving care and treatment by utilising informed decision making based on pateint preferences and best practices.

SCAGO

COVID-19 and My Child

Understanding how COVID-19 affects your child with sickle cell disease.

University Health Network

Elimination of race in estimates of kidney function

A race adjustment in kidney disease fuction equations to provide unbiased clinical management in Canada

Clinical Trials Ontario

Engaging Your Community Toolkit

Organizational toolkit to engage community members about clinical trials.

Hydroxyurea

The ins and outs of Hydroxyurea, a popular treatment option for individuals with sickle cell disease.

Iron overload

Understanding iron overload from blood transfusions, the risks and complicaitons.

Youth In Pain

Pain Management and Opioids Resource for Youths with Sickle Cell Disease

Summary poster of current scientific evidence about appropriate medical opioid use to manage pain for children and youth living with Sickle Cell Disease.

Patients & Caregivers Resource Hub

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Podcasts

This episode of mg par kilo features a conversation between host Maria Tamer, pharmacist at CHU Sainte‑Justine, and Marie, the pediatric nurse practitioner for the sickle cell disease team at CHU Sainte‑Justine in Montreal, Quebec.

mg par kilo is a French‑language educational podcast focused on pediatric medications. While created primarily for healthcare professionals, its clear, accessible approach also makes it a valuable resource for families seeking to better understand pediatric conditions and treatments.