Welcome to SCAGO
It is with great pleasure that I welcome you to another Summer Season. I invite you to have a tour of our website and email me if you have any question or comment. I also thank those of you who have contributed financially to SCAGO in the past; I am hoping that you would continue to support this worthy cause.
You may donate online or Request for Monthly Donation forms. I look forward to reading from you all.
Doreen Alexander
President
Sickle Cell Awareness Group of Ontario
E-Mail: president@sicklecellanemia.ca
Cc: info@sicklecellanemia.ca
PH: 416-745-4267
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| Sunday Afolabi was born with Sickle Cell Anemia to a middle class family in Nigeria West Africa. He grew up knowing that he was very special and brilliant as well. He looked forward to a day when nobody would have to suffer with Sickle Cell Disease. We are proud to move forward with his dream . Read More |
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| Dr. Richard Ward is an adult hematologist at Toronto General Hospital. He has given many hours to patient education. He provided an in-depth teaching on Avascular Necrosis to both Medical and the patient community. You may download and share. Kindly recognize SCAGO when you use materials from its website. Thank you |
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| Dr. Kevin Kuo is an adult hematologist at Toronto General Hospital. He has given many hours to patient education. He provided an in-depth teaching on Strokes in Sickle Cell Disease to both Medical and the patient community. You may download and share. Thank you |
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| Transfusions are most commonly given to Sickle Cell patients who have had a stroke or found to be at high risk of having a stroke. It can also be given for severe crisis, such as Acute Chest Syndrome or Aplastic Crisis. Downside? Toxic iron overload is an inevitable consequence of regular blood transfusion. Excess iron deposit damages organs and tissues. |
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| IDERA Emergency Grant is given to individuals living with Sickle Cell Disease or their caregivers in dire financial need. It is a one-time grant of $500 each. Usually 2 individuals/families benefit from this fund in a given year. The grant is sponsored yearly by yearly by Jodal Health; a health care agency in the heart of Toronto |
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| Granting scholarships to youths living with Sickle Cell Disease is part of what makes SCAGO unique. Currently we offer the Sunday Afolabi and the Sholape Scholarship grants. We have given over $20,000 away since inception of the grants. |
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| Olivia was a fighter who graduated from college with honours even when she had to spend many days in the hospital. She had 2 cats which were engraved on her tombstone. A very considerate person who would not bring a child to this world because she felt she might not be here to take care it. |
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| The Strategic plan for 2012-2014 would ensure that the organization keeps its focus on the issues and initiatives lined up for 2012-2014. It would be reviewed and revised bi-yearly to help steer SCAGO on the right path. The plan was put together by: Ms. Dotty Nicholas, Ms. Doreen Alexander, Ms. Lanre Tunji-Ajayi and Ms. Isatu Bah. |
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| Members of SCAGO are the backbone of the organization. They are integrally involved in the activities of the organization. These members guide the affairs of SCAGO and support it financially. If you are a patient, parent of a patient, advocate or just interested in helping to move the cause forward; then we need your membership. Kindly complete the membership form. Apply Here |
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| SCAGO supports patients, youths and parents of individuals living with Sickle Cell Disease. Support comes in various ways including financial, educational and other means. If you are young; it is important to join the youth group and follow us on face book and twitter /scago1 Parents may contact us to be placed under the EAST, Central or West Support groups |
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The Sickle Cell Awareness Group of Ontario in collaboration with Sickle Cell Association of Ontario and Association d’Anémie Falciforme du Quebec wrote Health Canada on its stand on the Permanent deferral of donors who have lived in or travelled to certain African countries (Cameroon, Central African Republic, Chad, Congo, Equitorial Guinea, Gabon, Niger or Nigeria) since 1977 and the sexual partners of these potential blood donors.
Many individuals living with Sickle Cell Disease requires continuos blood transfusion and stem cell transplant for their care and treatment. As a result, SCAGO educates and organizes Blood Drives and Stem Cell Registration. To help SCAGO increase its blood drive goals, please write us at: info@sicklecellanemia.ca
To increase phenotpye blood supply, we have also urged Health Canada to follow FDA "Final Guidance" regarding HIV-O Risk Questions.
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Sickle Cell & Thalassemic Disorders Act
Scago 2013 Gala
Scago Sickle Cell Ad
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