Sunday Afolabi was born with Sickle Cell Anemia to a middle class family in Nigeria West Africa. He grew up knowing that he was very special and brilliant as well. He would sometimes made comments such as “God must know why I have to bear this cross; but I look forward to a day when nobody will ever have to suffer from Sickle Cell Anemia again” He did not let anything deter his focus and he graduated high school in flying colors in 1986.
Sickle Cell Disease is not a black disorder, Here is Molly’s StoryNot without setbacks, her challenges include the unexpected suffering of a crisis in the midst of whatever endeavour she sets out to do, the emotional and mental challenge of not being able to get the needed help when a crisis happens. This in turn creates the fear of not being able to help herself should anything happen.
Despite this fear, she has continued to push herself beyond the boundaries, not allowing that to stop her quest to bring to the limelight how this disease needs to be told from everyone who has it, and how everyone needs to make the choice to unite to see that changes happen in finding a cure for this disease.
She remains a spokesperson for Sickle Cell Anaemia and makes it her duty when possible to speak at events and conferences; telling her story of living with Sickle Cell Anaemia. She remains an encouragement to those who have Sickle Cell Anaemia on being more willing to speak at events because it helps when everyone is educated about this disease since education is the vital link to seeing a cure happen.
The recent passing in parliament of Mandatory Newborn Screening for Sickle Cell Anaemia is one of the achievements credited to her efforts to get this disease in the forefront. The main focus is to have the education now than later. By screening for Sickle Cell Anaemia it helps families to be prepared for the future of our children. Her hope is that the advancement of science especially Stem cell research, can also help with finding a cure for this disease.
Molly’s desire is to ensure that Sickle Cell Anemia ceases to be a taboo subject, that it will no longer be an obscure issue which everyone is silent about, and that everyone who is living with Sickle Cell, or knows someone living with Sickle Cell will come out and tell their story no matter their age or ethnicity.
It is important that you tell your story. It could change our future, and it continues to educate those who may not know or is not aware that this disease.
One thing is for sure and that is, Molly will not be silent about this disease and is in no way ashamed to let people know. Being significantly impacted by this disease, and living with it should make you want to do something to make a difference in this world, no matter how small. Molly remains committed to telling her story to those who want to hear it.