SCAGO partnered with Jodal Health Care in 2008 to establish the Idera Emergency Grant for sickle cell patients or their caregivers in dire need. WE thank Jodal Health for stepping up to this initiative and helping us create the IDERA EMERGENCY GRANT*.
Like many other issues affecting the community, Sickle Cell Anemia could be prevented. This could be achieved through Genotype testing which is a painless procedure that will determine if someone has this disorder or carries its trait.
Unfortunately it is not a routine test and must be requested at the doctor’s clinic. Knowing your genotype and seeking genetic counseling will help you make informed decision before procreation. This is the way out of not passing this disorder to the future generations. It is the way of saving our children the pain, agony, complications and premature death that comes with Sickle Cell Anemia.
Beliefs on Sickle Cell Anemia Eradication
Poverty is a disease that has ruined many lives and destroyed many homes. Yet most of the time, it is due to the lack of access to the right information or positive role models that could help to propel someone forward in their quest to succeed that has grounded many to the poverty state. It is also imperative to know that Sickle Cell Disease sometimes work hand in hand with Poverty. With many parents/patients missing many days’/weeks’ work days, the reason is definitely not far-fetched.
SCAGO'S INITIATIVE ON POVERTY
Currently SCAGO organizes a yearly community summit where employers and educators among other groups present to the general community ways of improving educational and financial well being. Many leaders have found this summit a must as they learn new ideas that would help their followers and members.
Beliefs on Poverty Eradication
Programs and activities that we offer
1. Patient Visitation Program: A very important program ensuring that capable and smiling volunteers visit the patients when they are sick. Because a crisis admission could last for weeks, quite often family members are very stressed staying in the hospital with their loved ones day in day out; many also have to miss a great number of work days. With SCAGO volunteers, parents and family members are relieved and given the needed break.
2. Parents Network: In a quest to ensure parents are being educated and supported while taking care of their own children, SCAGO's Parents Support Network allows the parents to meet monthly and talk about different issues that are crucial to them. Many look forward to this constructive meetings where they relieve their stress by educating and socializing with one another
3. Youth Initiative: The young people are peculiar and need to be encouraged to come together and discuss issues peculiar to them especially issues around transition from pediatric to adult care. (Age group is 17-25 years)
4. Learning for Life Seminars: A monthly gathering where a Sickle Cell Specialist comes to educate the patients and their family members once a month. It encourages interaction between the medical and the patient community.
5. Scholarship Grant: This is for those in post secondary institution. SCAGO administers the Sunday Afolabi Scholarship grant, and the Sholape Animashawun Nursing grant for young people who are admitted to post secondary institutions
6. Laptop Initiative: Some young people living with Sickle Cell disease have dexterity problems. In the light of this, the Sunday Afolabi laptop initiative is created to offer these young people essential laptops to aid them in their quest to excel academically
7. Idera Emergency Grant: IDERA Emergency Grant is created to help families in dire financial need whose children is living with Sickle Cell Disease
8. Yearly Summit: Co- organizes a yearly medical Conference to better educate the Medical and the Allied Health workers on the disease so as to propel a better understanding & management of Sickle Cell Disease in the absence of viable cure. A better understanding by the medical team definitely means better care of the patients and great relief to parents
9. Advocacy: SCAGO advocates and speaks on behalf of the patient community to the Ministry of health and others law makers.
10. SCAGO's speakers visit various organizations and provide the groups with more education and awareness around this disease with a quest to increase more testing by the populace which will help to reduce the number of births born with the disease.
11. SCAGO gives genetic counselling to couples in other to ensure that are tested and are better informed about Sickle Cell Disease.
12. SCAGO works with the hospitals to ensure better knowledge and continual research on Sickle Cell Disease within the Medical professionals.
|Sickle Cell Awareness Group of Ontario (SCAGO) Board of Directors|
|Ms. Doreen Alexander||President, SCAGO||416-885-7039|
|Dr. Melanie Kirby-Allen||Pediatric Sickle Cell Specialist, Sick Kids||416-813-7606|
|Ms. Theresa George||Teacher, Board Member||416-554-3253|
|Dr. Jacob Pendergrast||Hematologist, Toronto General Hospital (TGH)||416-340-4800|
|Dr. Ian Quirt||Retired Hematologist, TGH|
|Rev. Audley James||Pastor, Revival Time Tabernacle Ministries||416-630-9346|
|Ms. Gloria Chukwuu||Secretary, Toronto Parent Coordinator||647-997-9277|
|Mr. Jenetha Gill||Retired Nurse, Board member||416-438-0424|
|Ms. Dotty Nicholas||Nurse Clinician, Vice President|
|Mr. John Adams||Chair, Advisory Board of Directors||416-925- 1559|
|Dr. Olaniyi Ajisafe||Exec.Director, Safe Care Medical Services||416-740-7233|
|Ms. Lillete Yakubu||Board Menber - West End Parent Coordinator||905-783-1161|
|Mr. David Ajise||Board Member||416-561-8394|
Members are the people that connect the organization to the community. They are the backbone of the organization and many a times those that volunteer and help educate the community. Being a member of SCAGO also gives you the opportunity to meet other people and be a part of this great family. Members will have voting rights and will receive the Financial Report of the Organization. Kindly indicate if an e-report or a mail-in report is desired.
Individual Membership fee: $30/year. Corporate/family Membership fee : $50/year
Membership form could be filled and submitted on line or snail mailed to the address below.
Sickle Cell Awareness Group of Ontario
235-415 Oakdale Rd.
North York, ON